Several factors determine the best place
for providing care to a person with an advanced illness. This type of decision
requires a balance between patient and family needs, and the availability of
resources to meet those needs.
Patient and family considerations include
the following:
- patient and family preference;
- physical ability to manage aspects of care
such as hygiene and movement/mobility;
- medical condition and needs such as
administering medications and managing symptoms;
- economic, emotional, social, and spiritual
needs.
Resources available to meet these needs
vary among areas and programs, and may include the following:
- home care services;
- the healthcare team;
- technical resources for symptom management,
such as pumps and injections.
When someone wants to be at home, healthcare
providers ask, "Can this person manage at home?” Someone who lives alone,
who is physically weak and whose burden of illness limits independence, is not
safe at home. Alternatives can include a care home, a hospice, or a hospital. A
person’s life expectancy often plays a role in determining the care setting.
Availability of resources is equally
important in deciding where to care for someone. A person who wants to stay
home needs support from family and/or friends, as well as their healthcare
providers. The healthcare team won’t be in the home around the clock, so family
and friends must be willing to participate in care. The healthcare team must
anticipate possible symptoms so they can provide medications and other resource
supports. In some parts of Canada, home care services may include providers
trained in palliative care. Cooperation between the healthcare team and family
or friends, can prevent possibly distressing symptoms and allow someone to die in
comfort at home.
The choice of where to care for someone may
come down to providing care in a setting where symptoms can be managed:
- A person may need hospital care. In some
parts of Canada, there may be units intended to have patients stay in hospital
for a long period. In other areas palliative care programs are community-based,
and have a limited number of palliative care beds. In such programs the
patient’s care is managed in the community, but they may be admitted to a
designated palliative care unit within a healthcare facility, if necessary. The
palliative care team there treats difficult symptoms and works to stabilize the
patient. When that is achieved, the patient leaves the unit and goes back home,
to a hospice, or to a care home.
-
A person may die at home. Symptoms can often
be managed at home. More planning is needed, but medications and other aspects
of care are often the same as they are in a hospital. Some procedures can only
be done in a hospital, and may require a short stay or a visit to a clinic.
One place is no better than another for
receiving care. It’s usually the needs and wishes of the patient and family
that determine the best place to receive care.